Quinn Linzer is only seven months old, but the Lynbrook baby has already served as flower girl, "swam with polar bears," gotten her ears pierced, "voted" in a presidential election, and attended "The Nutracker" and professional sport games. Oh, and she's even worn a wedding dress!
Since their daughter was diagnosed at 3 months old with an extremely rare and inevitably fatal, genetic neurodegenerative disease called Niemann-Pick Disease Type A (NPA), the Linzer Family, with help from friends and strangers, have been pulling out all stops to make sure Quinn's short life is full of memorable experiences. They created a "To-Do" list for her of things that every girl should do during her life, everything from a trip to Disney to simply dancing with her dad.
the Linzer's neighbors held a huge yard and bake sale, raising money to pay for some of the items and excursions on Quinn's list. So far, the family has checked off 12 experiences, but 39 more still remain including that trip to Disney, tea at The Plaza, swimming with dolphins, and simple, yet special moments such as flying a kite and playing with a puppy.
To help Quinn, her parents and her brothers, ages 3 and 4, continue to make "happy memories to last a lifetime" together, their friends will be holding a benefit this Saturday, Jan. 19, from 1 to 5 p.m. at Lily Flanagan's Pub (345 Deer Park Ave.) in Babylon. There will be a cash bar, food, music, silent auctions, a 50-50 and other raffles. Tickets are $25.
Writing on her blog, "Linzer, Party of Five," through which she chronicles her family's journey coping with Quinn's illness and completing the items on her daughter's list, Eileen Linzer said:
"It is exhausting living each moment to its fullest, but Quinn has taught us that living any other way simply isn't living."
To purchase tickets to Saturday's benefit or to make a donation, send an email to Candace.email@example.com.