.

Lynbrook Family Makes Most of Time with Terminally Sick Baby

Garage sale supports Linzer Family's mission to give Baby Quinn a full life.

"Everyone should go to a baseball game ... play with (and get licked by) a puppy ... do Disney ... watch a sunrise ... love and be loved as much as possible, each and every day."

These are just some of the experiences on 5-month-old Quinn Linzer's lengthy To-Do List, but while most babies have their whole life ahead of them, Miss Quinn, as her mother Eileen calls her, has only her childhood to live a lifetime.

At just three months old, Quinn, whose family lives in Lynbrook, was diagnosed with Niemann-Pick Disease Type A (NPA), an extremely rare genetic neurodegenerative disease that affects 1 in 250,000 children.

Writing on her blog, "Linzer, Party of Five," through which she chronicles her family's journey coping with Quinn's illness, Eileen Linzer explained:

"The reality of it is that NPA leads to an early death, anywhere from 15 months to 3+ years. And before she is gone, she will be taken from us by way of severe developmental retardation and regression. There is no treatment there is no cure." 

Eileen and her husband Brett, who also have two young boys, have decided against stem cell treatment and opted instead for pallative care for their daughter, so that they will be able to make the most of the limited time their family has with her.

Their mission, Eileen explains, is "to give her as wonderFULL a life as we could possibly give her."

To support the Linzers in this endeavor, several of their neighbors have organized a multi-family garage sale and bake sale that will take place this Saturday, Oct. 20, at 208 Union Avenue from 10 a.m. to 3 p.m. Tickets ($25) will also be available for purchase to attend Quinn’s benefit on Jan. 19, 2013 at Lily Flanagan’s in Babylon and donations will be accepted. 

Alll the funds collected will be used to "provide Quinn and her family with happy memories to last a lifetime."

If you cannot attend, but wish to donate please email Michelle Mastrande at mrsmastrande@yahoo.com.

Connie Pellechhia February 26, 2013 at 05:06 PM
Dear Linzer Family, My name is Connie Pellechia and I am the Manager of Guest Services at Long Island Aquarium. A gentlemen by the name of Ken Lebohner brought me in your article from Newsday. On your list is to have Quinn kissed by a butterfly. We would love to have all of you come to our facility and bring her into our Exhibition Center where she can be kissed by one of our butterlies. Please contact me at your earliest convenience. Very Truly Yours, Connie Pellechia 631-208-9200 X 108
Matthew Hogan February 26, 2013 at 07:37 PM
@Connie Pellechhia: I have reached out to the Linzer family on your behalf. I will let you know when I hear something back. -- Matthew Hogan Associate Regional Editor Nassau County
lisa bartlett March 01, 2013 at 08:56 AM
Dear Lynbrook Family, You tell me what weekend and please be my guest at Walt Disney World Park! Yours Truly, Lisa B.
Nanine McLaughlin March 11, 2013 at 03:39 PM
Dear Linzer Family, My name is Nanine McLaughlin and I am the Principal of Garden City High School. Our Student Council would like to sponsor your visit to Nunley's Carousel and send your family to lunch. If you are interested, please contact me at mclaughlinn@gcufsd.net or call (516) 478-2000. Our thoughts are with your lovely daughter Quinn and your beautiful family! Sincerely, Nanine McLaughlin

Boards

More »
Got a question? Something on your mind? Talk to your community, directly.
Note Article
Just a short thought to get the word out quickly about anything in your neighborhood.
Share something with your neighbors.What's on your mind?What's on your mind?Make an announcement, speak your mind, or sell somethingPost something