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Linzer Family's Journey to Complete Infant's 'To-Do' List Continues

Lynbrook's Quinn Lizner was diagnosed with Niemann-Pick Disease Type A at 3 months old.

Trip to FAO Schwartz? Check.

Participate in a polar plunge? Check.

Attend a baseball game? Check.

The "to-do" list for 9-month-old Quinn Linzer is getting shorter by the day.

At just 3 months old, Linzer, whose family lives in Lynbrook, was diagnosed with Niemann-Pick Disease Type A (NPA), an extremely rare genetic neurodegenerative disease that affects 1 in 250,000 children. Currently, the disease is only believed to be affecting four children in the entire country.

Quinn's mother Eileen and father Brett started a blog for their youngest child. The blog, entitled "Linzer, Party of Five," details Quinn's progress and how she's doing with her checklist.

While a total of 14 items have been crossed off Quinn's checklist, there's still a lot left, including things like a trip to Disney World, a picnic in Central Park and being kissed by a butterfly.

But with each day, more attention is being drawn to the Linzer's tale of triumph in the face of tragedy and with the attention comes an overwhelming amount of support to help Quinn complete her list of a lifetime.

Connie Pellechia, Manager of Guest Services at Long Island Aquarium, said on Patch, "We would love to have all of you come to our facility and bring [Quinn] into our Exhibition Center where she can be kissed by one of our butterlies."

Adapting the spotlight hasn't been a problem for little Quinn. The 9-month-old was featured on the cover of Sunday's Newsday, followed by a stint on News12 at night.

To keep up with the Linzer family and little Quinn, check out their blog.

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